DECEMBER CHALLENGE! Donations up to $20,000 made before 12/31/2022 will be matched!

Raising funds to research causes, treatments and potential cures for PSC, primary sclerosing cholangitis. Join us and show your love!

Year-end Matching Offer! Donations made in the month of December will be matched up to $20,000 thanks to two generous donor families for this offer!

PSC Partners Seeking a Cure Canada is a registered Canadian charity, affiliated with US-based nonprofit, PSC Partners Seeking a Cure. Learn more about us at PSCPartners.ca. Gifts made to this campaign will be eligible for a receipt for Canadian tax purposes issued by the Charitable Impact Foundation.

If you prefer to make a donation with a receipt from a US 501(c)(3) nonprofit, please do so here. To learn more about the US organization, and for reliable and medically vetted source of information about PSC, please visit PSCPartners.org.

If you are making a memorial donation or a donation in someone's honour and would like us to notify family or honoured individual, after making your donation here, please complete this form.

Guided by our mission to drive research to identify treatments and a cure for primary sclerosing cholangitis (PSC), while providing education and support for those impacted by this rare disease, we’ve been busy in 2021. Some of our activities are summarized below. If you’d like to hear more about our 2022 activities, we love to talk! Simply reach out by e-mailing [email protected]!

Highlights of 2022 Activities

RESEARCH: 

Grants: Awarded one two-year grant for a new promising research study, complementing the 2022 research projects funded by PSC Partners (US). Read more at Canadian funded projects.

A Global Initiative (WIND): PSC Partners Canada and PSC Partners are launching a joint project to develop a PSC Partners-Driven Global Natural History Database. Together with PSC researchers, we aim to prospectively collect data on a cohort of PSC patients from multiple countries to help rigorously document the natural disease course of PSC. This is a five-year project made possible by a consortium of funders, US and Canadian, who have committed significant 5-year funding plans to support this critically important project. You can read more about this project at the WIND PAGE.

Awarded the 3rd CASL PSC Partners Canada Award for the best abstract on PSC presented at the Canadian Liver Meeting 2022.

Serving as collaborator in an integrated knowledge translation role for a four-year CIHR-funded PSC research study on mapping the cells of the PSC liver. 

ADVOCACY: 

Collaborated with PSC advocacy groups worldwide, culminating in the second annual Global PSC Awareness Day. Planning is already underway for 2023!

Represented the voice of the Canadian PSC community at virtual international medical conferences: AASLD, PSC Forum, CALD, and CASL.

EDUCATION: Together with PSC Partners, PSC Partners Canada participated in the first virtual annual conference (June 2022).

SUPPORT: We continue to support the Canadian PSC community through social media and our website, highlighting Canadian-specific information and resources to complement the rich content of the PSC Partners US offerings. We connect newly-diagnosed patients with community mentors and stand ready to provide support by email or phone.

THINKING BIG WITH RARE AS ONE: Participated in numerous educational webinars and nonprofit gatherings offered by the Chan Zuckerberg Initiative's Rare As One Project. PSC Partners is one of 50 patient-led organizations chosen for this project designed to increase international research and drive progress towards the search for cures. Two members of the Canadian Board are part of this cohort.


Thank you for your continued support to PSC Partners Seeking a Cure Canada over the years!