We Need to End This Disease
ALS (Lou Gehrig’s Disease) is one of the most brutal diseases facing humanity. ALS weakens motor neurons, which stop sending signals to muscles, which causes people to weaken and waste away. Eventually, the brain loses its ability to initiate and control voluntary movements. The average life expectancy for a person diagnosed with ALS is 3-5 years, and the road is a hard one to travel.
Hope is on the Horizon
Although an ALS diagnosis has been treated as a death sentence, new treatments that can stop and even reverse progression are in development. Researchers are optimistic that these emerging treatments will make ALS a manageable illness within the next ten years. The clock is ticking for people diagnosed. We must ensure that our health system is ready to provide immediate, equitable access to all promising new therapies. Unfortunately, the Canadian health system is not yet set up to give people with ALS a fighting chance.
Here's Our Solution
People with ALS need the Canadian health system to:
1) Invest in more research to better understand and manage the disease.
2) Make sure that new treatments are rapidly approved.
3) Ensure equitable access to treatments and trials for all Canadians.
These changes are not difficult, but they do require will. ALS patients have created the ALS Super Fund
to inspire change.
Let’s Do It Together
ALS charities have been set up in provinces across Canada. These charities provide critical physical support to people with ALS and make some investments in research and policy change. The ALS Super Fund
will work with all charities across Canada, as well as government, businesses, researchers, and Foundations, directing funds to where they are most needed. The ALS Super Fund
has created an Advisory Council comprised of Canada’s top minds in ALS – to ensure that resources are provided to ALS hotspots across the country.
Join Us Now
The ALS Super Fund
was created by ALS Action Canada, a patient-led organization founded by people determined to catalyze a movement of change. The goal of the ALS Super Fund
is to create a unified solution to a common problem: ending ALS. We know the changes required to #endALS.
ABOUT ALS ACTION CANADA
Formed in February 2020, ALS Action Canada is a patient-led movement catalyzing urgent action to cure ALS, or at least make it a manageable illness. ALS Action Canada has a strong and growing network of patients, caregivers, and supporters who have experienced the horror of ALS and are tirelessly committed to ending the disease as we know it. ALS Action Canada created the ALS Super Fund
to bring together and actively support all organizations working to #End ALS.
Learn More. Join Us.